Sunday, December 4, 2011

Ben's Lungs...again...

So...Mr. Benjamin is at it again.  He is back on his nebulizer between 2 and 4 times per day. 
We find it easiest to get a treatment in while he's asleep.
He has also been approved for a 2nd round of Synagis.  Synagis is a shot that he needs to get 1x/month during the winter to help prevent (hopefully) him from getting RSV.  He was the only 1 of the 3 to be approved for this shot, most likely because of his lung issues.  People without Preemies (PwoP) don't understand what a big deal it is to get approved for this shot the first time, nevermind the second time.  It is almost unheard of to be approved for it 2 years in a row.  It costs $1000 per dose.  Ben needs 5 doses (November, December, January, February, March).  There are very strict regulations as to who gets it because of the expense.  We are also very lucky because we only have to pay $40 out of pocket for each dose because our insurance picks up the rest of the tab.  Last year, we didn't have to pay for any of the boys, but because Ben weighs more than two times what he did last year, he needs a much bigger dose.

We don't know why Ben continues to have these issues with his lungs. Could it be hereditary?  Dave had asthma until he was 12.  Could it be because he decided to pop his amniotic sac and then hang out for 2+weeks with no fluid?  We'll never know.  What we do know is how lucky we are that this is the only issue we have to deal with and we thank God for our healthy boys every single day.

No comments: